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Toddler With Rare Genetic Disorder Gets ₹ 16 Crore Injection Free From US Firm

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Nashik:  The upcoming second birthday of Shivraj Daware, who is from Nashik in Maharashtra, will be very special for his parents who claimed that the toddler, suffering from a rare genetic disorder, had become the first such patient from India who was given a ₹ 16 crore life-saving injection by a…

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World’s costliest injection not enough to save Vedika; 1-year-old girl loses battle to spinal muscular atrophy

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One-year-old Vedika Sourabh Shinde, whose deteriorating health condition due to a genetic disorder had drawn worldwide support, passed away Sunday evening at Deenanath Mangeshkar Hospital in Pune. Vedika was suffering from spinal muscular atrophy, a rare genetic disease affecting the central nervous system and…

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